Ongoing Research Projects:

  • Clinical, radiological, and histo-genetic characteristics of long-term survivors of diffuse intrinsic pontine glioma: a collaborative report from the International and SIOP-E DIPG Registries
  • Establishment of Intra-brain Stem Xenograft Mouse Models and Permanent Cell Cultures of DIPG
  • An epidemiological study to determine incidence patterns of DIPG in North America
  • Patterns of cerebrospinal fluid diversion and survival in children with diffuse intrinsic pontine glioma
  • Comprehensive Molecular-Based Cross-Species Comparison of DIPG Biology
  • Diffuse intrinsic pontine glioma as a late complication of medulloblastoma therapy: a report from the International DIPG Registry and review of the literature
  • Radiogenomic Evaluation of Radiation Resistance in Diffuse Intrinsic Pontine Glioma
  • Characteristics of Diffuse Intrinsic Pontine Gliomas in Patients Over 10 Years Old: A DIPG Registry Study
  • Determining predictive factors of survival through clinicopathologic, genomic and radiographic analysis of infants < 3 years of age with Diffuse Intrinsic Pontine Glioma: A study from the International DIPG Registry
  • Imaging Phenotype and Survival in DIPG

Manuscripts Published:



To submit a research proposal please contact the Registry office at:

1-877-349-8074 or

Or access the application here: