• Study 1: Clinical, radiological, and histo-genetic characteristics of long-term survivors of diffuse intrinsic pontine glioma: a collaborative report from the International and SIOP-E DIPG Registries (Oral presentation ISPNO, 2016)
  • Study 2: DIPG: Contemporary Survival Endpoints (Cooney, Monje, Warren: Poster presentation, ISPNO, 2016)
  • Study 3: Establishment of In Vitro and In Vivo Models (Li, Monje)
  • Study 4: External validation of the Survival Prediction Model for Diffuse intrinsic pontine glioma.  (Poster  presentation: ISPNO)
  • Study 5: Comprehensive Molecular-Based Cross-Species Comparison of DIPG Biology (Nazarian, Becher, Drissi, Hawkins).
  • Study 6 :  Imaging Phenotype and Survival in DIPG (Leach).
  • Study 7 : DIPG Secondary to MB/Ependymoma Therapy (Koschmann)

To submit a research proposal please contact the Registry office at:

1-877-349-8074 or referrals@dipgregistry.org