Please consider enrolling in the DIPG Registry. Patients and families who want to include their child’s information in the DIPG Registry should contact the Registry, (1-877-349-8074 or firstname.lastname@example.org) to request Registry consent forms which will authorize their child’s hospital to give information to the Registry.
DIPG is rare, and individual patients can have important differences in their genetics, tumor biology, response to treatment, and clinical course. Because of these differences, the registry will be most useful if it collects data and tumor samples from the largest and most diverse group of patients possible.
Click here for more information about how to enroll in the registry.
Visit the DIPG Collaborative and support the DIPG Registry.