The purpose of the registry is to support research related to DIPG. Data and samples from the registry are available both to researchers affiliated with the registry and to external researchers.

Research proposals from internal and external investigators will be evaluated by an advisory committee for scientific merit and appropriate use of resources before approval.

To request access to registry data or samples for a research project, please contact:

International DIPG Registry Office

Hours: Monday-Friday, 8:30am - 4:30pm EST

Telephone: 1-877-349-8074




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The International DIPG Registry is proud to announce we have just enrolled our 800th patient! We would like to thank our patients and families as well as the #DIPGCollaborative for their continued support. We will keep doing everything we can to move research forward. #FightDIPG #DIPG #DIPGregistry ... See MoreSee Less

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Listen to this great explanation about the DIPG Registry from The Cure Starts Now! ... See MoreSee Less

Listen in while Dr. Trent Hummel and Keith talk about the DIPG Registry and other collaborative programs. #givingtuesday #homeruncure

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