Some DIPG researchers have advocated that patients and families be approached more regularly to consider postmortem brain or tumor donation. One recent institutional series demonstrated that approximately half of those approached for autopsy, agreed to the autopsy and tissue donation; no families reported additional distress from the autopsy; and families generally reported deriving comfort from the hope that donated tissue could contribute to research. The study also demonstrated that tissue adequate for analysis was obtained as long as 48 hours after death.
- Angelini, P., et al., Post mortem examinations in diffuse intrinsic pontine glioma: Challenges and chances. Journal of neuro-oncology, 2011. 101(1): p. 75-81