For patients, families, and medical professionals
The DIPG Registry and this web site provide: (1) a source of information about DIPG, including the biology of the disease, symptoms and diagnosis, current treatment approaches, and ongoing and planned research; (2) access to consultations from experts affiliated with the registry; (3) the opportunity to contribute to our knowledge about DIPG and to potentially help future patients by enrolling patients in the registry; and (4) links to additional resources.
For researchers, the registry provides a source of comprehensive clinical, radiologic, and pathologic data linked to a bioinformatics repository of molecular data for a substantial cohort of DIPG patients. Frozen tissue samples may also be available. Research proposals from external investigators will be evaluated by an advisory committee for scientific merit and appropriate use of resources before approval.
For more information about how to submit a research proposal, please contact: